Sunday, March 16, 2014

5 Year Anniversary


5 Year Anniversary


5 years ago I made the decision to start a non profit, because there was a lack of initiatives from large organizations in underserved communities. It's been 5 years and sadly not much has changed. There is still a huge disparity in African American, Latino, Asian, and the Poor in the fight against Autism Spectrum Disorder.

It's Mid-March and like every year I'm getting a huge influx of invites to Autism Galas, Conventions, Walks, and etc. Every year I look at the panel list for many of these events and I very rarely see a person of color. Can I tell you...I get a little irritated by this because, I'm never contacted about participating or partnering. But I'm not alone there are many other organizations like mine who never seem to get approached either. So, imagine my raised eyebrow when a certain national organization began an ad campaign in the African American Community with the tag line "autism  doesn't discriminate"... Hmm that sounds really familiar...Oh yes that's right because it's been the COA's tag line for 5 years. In 2010 I created a mailer to 100 plus African American Churches in the US regarding a partnership to enlighten their parishioners about autism. Out of that 100 plus I received only two responses. In 2013, the previously referred to organization lit it up Blue with the Black Church Initiative, and of course more than two churches responded to them.

Now, your sensing some sarcasm and hostility and your right.  Because helping to bridge the disparity is much more than a billboard, a celebrity, and a exhibitor booth. The only way to make a real difference is to engage people that are actually making a difference in their communities in the fight against Autism.  There are a handful of us, but we are making a difference slowly. Our impact could be greater if we had a greater reach and a national partnership would do that. 

You've probably figured who the "Big Organization" is. This isn't so much about bashing them as much as it is me growing tired of them jumping on the bandwagon and spring boarding off others initiatives rather than engagement. But I'm also going to need Celebrities of Color to stop blindly endorsing organizations that have no initiatives in their communities. I'm going to need folks to stop signing up for walks,  for organizations that aren't walking through your community. Don't just think because you see a famous musician,actress,or sports figure on a billboard or TV ad, that they are helping the underserved. The only way communities of color and make strides against autism is actual programs to help them flourish.

Even though this blog rant makes me sound like cranky mccrankerson. I really have to thank The National Autism Association for their efforts to find Avonte Oquendo and for pushing for Wandering legislation. They realize that so much more needs to be done! And They're RIGHT!


If you or someone you know wants to make a difference in underserved communities visit www.thecolorofautism.org
#autism #nationalautismassciation #africanamerican #blackchurch #community